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The COVID-19 pandemic highlighted the under-utilisation of statutory mental health care services by minority ethnic groups in the United Kingdom (UK).
Aim:
To improve ethnicity reporting to better understand the needs of patients accessing a primary care talking therapies service.
Method:
We conducted a clinical audit to observe outcomes from pre-COVID (2019), first wave of COVID-19 (2020) and 2021 for three broad ethnic categories: black African/Caribbean, Asian and white British. Intervention was conducted on staff to improve data recording of ethnicity. A patient survey was sent to those identified as dropped out from treatment from May 2020 to April 2021. A total of 229 patients responded to the survey. The survey asked for reasons that impacted on not continuing with sessions.
Results:
Quantitative analysis showed a statistically significant difference on discharge outcome between white British and black African/Caribbean (p=<0.0001), with black African/Caribbean patients most likely to drop out of treatment, and in 2020 the Asian population was below the recovery target of 50%. Qualitative analysis revealed therapist factors included lack of confidence in therapist and not being listened to, patient factors included neurodiversity, being unsure whether it would be helpful and confidentiality concerns, and service factors included being notified of discharge from the service, remote delivery of therapy, treatment options, and treatment materials.
Discussions:
Services must work towards improving service provision by capturing hidden disparities and socialising treatment to meet the needs of minority ethnic groups in the UK. The present study recommends culturally adapted treatment and co-producing therapy materials.
States in the Middle East and North Africa (MENA) region since independence have had limited experience with stable constitutional arrangements for decentralization of decision-making to regional or communal governments. Experiments from non-MENA countries provide models that might be borrowed to help hold together MENA’s culturally plural societies. These other countries have experimented with nonterritorial, homeland, subdivided homeland, and multiethnic jurisdictions. These constitutional arrangements vary in the powers they allocated to the subnational jurisdictions to select local leadership and make cultural and economic policies. The constitutional arrangements also vary in the guarantees against central intervention in the internal affairs of the sub-national jurisdictions. To make these arrangements more stable, these experiments have tried various provisions for limiting unilateral constitutional amendment, sharing rule in the central government, balancing different types of jurisdictions against one another, and subordinating the constitutional order to international guarantors.
This chapter opens by stating the main research question, namely whether power sharing reduces civil conflict or not. After briefly illustrating successful and unsuccessful cases of power sharing, we introduce our approach, which builds on a stream of work in conflict research stressing how exclusion of ethnic groups increased the risk of civil conflict. If this relationship is correct, one would expect the reverse to be true as well. That inclusion of ethnic groups through both territorial and governmental power sharing brings peace is indeed our working hypothesis. Still, there are good reasons to expect that this relationship may be more complicated. There are four main challenges that need to be addressed. First, it is essential not to lose sight of how power sharing is channeled through practices rather than merely being expressions of formal institutions. Second, analysts need to consider full samples rather than focusing only on cases that experienced conflict. Third, rather than being exogenously imposed, power sharing is usually enacted with an eye to future outcomes and is therefore profoundly endogenous to conflict. Finally, it is insufficient to analyze territorial power sharing without considering how pacific outcomes may hinge on whether this type of power sharing is being combined with governmental power sharing at the center. In fact, a failure to come to grips with these difficulties go a long way toward explaining why some researchers find no conflict-reducing effect, and sometimes even a conflict-increasing impact.
Computerised neuropsychological assessments (CNAs) are proposed as an alternative method of assessing cognition to traditional pencil-and-paper assessment (PnPA), which are considered the “gold standard” for diagnosing dementia. However, limited research has been conducted with culturally and linguistically diverse (CALD) individuals. This study investigated the suitability of PnPAs and CNAs for measuring cognitive performance in a heterogenous sample of older, Australian CALD English-speakers compared to a native English-speaking background (ESB) sample.
Methods:
Participants were 1037 community-dwelling individuals aged 70–90 years without a dementia diagnosis from the Sydney Memory and Ageing Study (873 ESB, 164 CALD). Differences in the level and pattern of cognitive performance in the CALD group were compared to the ESB group on a newly developed CNA and a comprehensive PnPA in English, controlling for covariates. Multiple hierarchical regression was used to identify the extent to which linguistic and acculturation variables explained performance variance.
Results:
CALD participants’ performance was consistently poorer than ESB participants on both PnPA and CNA, and more so on PnPA than CNA, controlling for socio-demographic and health factors. Linguistic and acculturation variables together explained approximately 20% and 25% of CALD performance on PnPA and CNA respectively, above demographics and self-reported computer use.
Conclusions:
Performances of CALD and ESB groups differed more on PnPAs than CNAs, but caution is needed in concluding that CNAs are more culturally-appropriate for assessing cognitive decline in older CALD individuals. Our findings extend current literature by confirming the influence of linguistic and acculturation variables on cognitive assessment outcomes for older CALD Australians.
China is one of the most multilingual countries in the world. The government of the People’s Republic of China promotes the country as a harmonious and unified nation with 56 distinct ethnic groups who speak more than 400 heritage languages. The government has not only legally recognized multilingualism but also publicly encouraged a climate where the teaching and learning of a variety of heritage languages can flourish. This chapter provides insights into our understanding of Chinese language policy and implementation and heritage language maintenance and is based on empirical research and case studies in China’s multilingual regions and provinces. It examines the application of the Chinese government’s language policy and heritage language practices over the last 30 years with its underlying language ideology and practices, revealing de facto language policies. While modern standard Chinese (Putonghua) continues to be a powerful factor in both consolidating and probing educational, cultural, social, and political discourse as well as the spatial environment, Xi Jinping’s recent “One Belt and One Road” project has created a new linguistic environment, which has affected the use of heritage languages within diverse minority groups. This has accelerated the deep concern shared among those advocating heritage language maintenance in China.
The Improving Access to Psychological Therapies (IAPT) programme aims to provide equitable access to therapy for common mental disorders. In the UK, inequalities by ethnicity exist in accessing and receiving mental health treatment. However, limited research examines IAPT pathways to understand whether and at which points such inequalities may arise.
Methods
This study examined variation by ethnicity in (i) source of referral to IAPT services, (ii) receipt of assessment session, (iii) receipt of at least one treatment session. Routine data were collected on service user characteristics, referral source, assessment and treatment receipt from 85 800 individuals referred to South London and Maudsley NHS Foundation Trust IAPT services between 1st January 2013 and 31st December 2016. Multinomial and logistic regression analysis was used to assess associations between ethnicity and referral source, assessment and treatment receipt. Missing ethnicity data (18.5%) were imputed using census data and reported alongside a complete case analysis.
Results
Compared to the White British group, Black African, Asian and Mixed ethnic groups were less likely to self-refer to IAPT services. Black Caribbean, Black Other and White Other groups are more likely to be referred through community services. Almost all racial and minority ethnic groups were less likely to receive an assessment compared to the White British group, and of those who were assessed, all racial and ethnic minority groups were less likely to be treated.
Conclusions
Racial and ethnic minority service users appear to experience barriers to IAPT care at different pathway stages. Services should address potential cultural, practical and structural barriers.
Black adults are approximately twice as likely to develop Alzheimer’s disease (AD) than non-Hispanic Whites and access diagnostic services later in their illness. This dictates the need to develop assessments that are cost-effective, easily administered, and sensitive to preclinical stages of AD, such as mild cognitive impairment (MCI). Two computerized cognitive batteries, NIH Toolbox-Cognition and Cogstate Brief Battery, have been developed. However, utility of these measures for clinical characterization remains only partially determined. We sought to determine the convergent validity of these computerized measures in relation to consensus diagnosis in a sample of MCI and healthy controls (HC).
Method:
Participants were community-dwelling Black adults who completed the neuropsychological battery and other Uniform Data Set (UDS) forms from the AD centers program for consensus diagnosis (HC = 61; MCI = 43) and the NIH Toolbox-Cognition and Cogstate batteries. Discriminant function analysis was used to determine which cognitive tests best differentiated the groups.
Results:
NIH Toolbox crystallized measures, Oral Reading and Picture Vocabulary, were the most sensitive in identifying MCI apart from HC. Secondarily, deficits in memory and executive subtests were also predictive. UDS neuropsychological test analyses showed the expected pattern of memory and executive functioning tests differentiating MCI from HC.
Conclusions:
Contrary to expectation, NIH Toolbox crystallized abilities appeared preferentially sensitive to diagnostic group differences. This study highlights the importance of further research into the validity and clinical utility of computerized neuropsychological tests within ethnic minority populations.
Demographic trends and the globalization of neuropsychology have led to a push toward inclusivity and diversity in neuropsychological research in order to maintain relevance in the healthcare marketplace. However, in a review of neuropsychological journals, O’Bryant et al. found systematic under-reporting of sample characteristics vital for understanding the generalizability of research findings. We sought to update and expand the findings reported by O’Bryant et al.
Method:
We evaluated 1648 journal articles published between 2016 and 2019 from 7 neuropsychological journals. Of these, 1277 were original research or secondary analyses and were examined further. Articles were coded for reporting of age, sex/gender, years of education, ethnicity/race, socioeconomic status (SES), language, and acculturation. Additionally, we recorded information related to sample size, country, and whether the article focused on a pediatric or adult sample.
Results:
Key variables such as age and sex/gender (both over 95%) as well as education (71%) were frequently reported. Language (20%) and race/ethnicity (36%) were modestly reported, and SES (13%), and acculturation (<1%) were more rarely reported. SES was more commonly reported in pediatric than adult samples, and the opposite was true for education. There were differences between the present results and those of O’Bryant et al., though the same general trends remained.
Conclusions:
Reporting of demographic data in neuropsychological research appears to be slowly changing toward greater comprehensiveness, though clearly more work is needed. Greater systematic reporting of such data is likely to be beneficial for the generalizability and contextualization of neurocognitive function.
The longue durée of Bangladesh history is closely linked to the movement of several frontiers. Agriculture gradually replaced the rainforest to create highly productive economies based on rice cultivation on rich delta soils. States first emerged in the south and west and, over time, also in the east. A moving religious frontier slowly incorporated local religions into larger creeds, notably Buddhism, Hinduism and Islam. And a language frontier pushed many local languages to the margins as a result of the rise of Indo-European languages that, by the tenth century CE, would morph into the Bengali language.
This paper examines ethnic differences in fuelwood consumption in rural households, using an original survey dataset from two western Chinese provinces with large ethnic minority populations. We use a Heckman two-stage selection model to explain the quantity of fuelwood consumed conditional on a decision to use fuelwood. We find that ethnic minority families are more likely than majority Han Chinese families to use fuelwood. We also find that a household's off-farm income has a stronger negative effect on the quantity of fuelwood consumed for the ethnic minority families than for the Han Chinese families. In addition, families owning a larger area of forestland are more likely to use fuelwood. Yet the quantity of fuelwood consumed, especially in ethnic minority families, does not increase with owned forestland. Finally, we find that coal, rather than electricity, is a substitute for fuelwood for residential cooking and heating.
Measurement of body composition is increasingly important in research and clinical settings but is difficult in very young children. Bioelectrical impedance analysis (BIA) and air displacement plethysmography (ADP) are well-established but require specialist equipment so are not always feasible. Our aim was to determine if anthropometry and skinfold thickness measurements can be used as a substitute for BIA or ADP for assessing body composition in very young New Zealand children. We used three multi-ethnic cohorts: 217 children at a mean age of 24·2 months with skinfold and BIA measurements; seventy-nine infants at a mean age of 20·9 weeks and seventy-three infants at a mean age of 16·2 weeks, both with skinfold and ADP measurements. We used Bland–Altman plots to compare fat and fat-free mass calculated using all potentially relevant equations with measurements using BIA or ADP. We also calculated the proportion of children in the same tertile for measured fat or fat-free mass and tertiles (i) calculated using each equation, (ii) each absolute skinfold, and (iii) sum of skinfold thicknesses. We found that even for the best equation for each cohort, the 95 % limits of agreement with standard measures were wide (25–200 % of the mean) and the proportion of children whose standard measures fell in the same tertile as the skinfold estimates was ≤69 %. We conclude that none of the available published skinfold thickness equations provides good prediction of body composition in multi-ethnic cohorts of very young New Zealand children with different birth history and growth patterns.
Within the broader literature on political representation, studies exploring Indigenous forms of representation are rather limited. Where they exist, they tend to explore how Western models of political representation include Indigenous peoples, conflating Indigenous groups with ethnic minorities. This article asks whether and how Indigenous political representation might be distinguished from the representation of ethnic minorities. Our argument is that Indigenous groups’ identities tend to be based on different claims and relationships to the state than ethnic groups, which leads to political mobilization seeking a means to respond to the colonial nation-state project. We develop a theoretical framework that identifies three principles that ought to inform an effective and legitimate model of Indigenous political representation: recognition, protection and decolonization. We then apply this theoretical framework to assess the extent to which existing models of Indigenous representation in Bolivia, Canada, New Zealand and Norway correspond with these three principles.
South Asian migrants have a higher burden of life-threatening diseases and chronic diseases compared to other ethnic groups. Yet, knowledge gaps remain around their palliative care needs in the host countries. The aim of the review was to present results from a systematic literature review of available international evidence on experiences with and perspectives on palliative care among older South Asian migrants, relatives, and healthcare providers.
Methods
A systematic review in accordance with PRISMA guidelines was conducted in February 2018, searching PubMed, CINAHL, PsychINFO, and EMBASE databases. PROSPERO #CRD42018093464. Studies included empirical research, providing international evidence on experiences and perspectives on palliative care of South Asian migrants and were published between 2000 and 2018. Thematic synthesis was used to analyze data.
Results
A total of 30 articles were included: qualitative (24), quantitative (5), and mixed methods (1). Three main themes were discovered: 1) palliative care practice within the family, 2) trust as a precondition of palliative care, and 3) the importance of knowledge and cultural competency. All the themes, to a greater or lesser extent, are related to access to and use of palliative care services by South Asian migrant families.
Significance of results
Involvement of family members in palliative care decision making could improve the satisfaction of South Asian migrant families toward the service. For example, Advanced Care Planning involving family members could be a possible way to engage family members in palliative care decision making. Supportive interventions, e.g. providing knowledge, aimed at patients and their family members might improve knowledge and increase awareness among South Asian migrant families of palliative care. Knowledge gained from this review could be implemented with other ethnic minority groups.
To evaluate whether the lifestyle intervention MetSLIM targeting individuals of low socio-economic status of Turkish, Moroccan and Dutch origin was successful in improving waist circumference and other cardiometabolic risk factors, lifestyle behaviour and quality of life.
Design
A quasi-experimental intervention study (Netherlands Trial Register NTR3721). The intervention group participated in a 12-month combined dietary and physical activity programme. Examinations were performed at baseline and after 12 months. Participants underwent anthropometric measurements and blood withdrawal, and completed questionnaires on dietary intake, physical activity and quality of life.
Setting
Socio-economically deprived neighbourhoods in two Dutch cities, involving non-blinded ethnicity-matched and gender-matched research assistants, dietitians and sports instructors.
Subjects
Mainly Turkish (49 %) and Dutch (36 %) subjects, aged 30–70 years, with a waist-to-height ratio of >0·5 (intervention, n 117; control, n 103). Dropout was 31 %.
Results
At 12 months, the intervention group showed greater improvements than the control group in waist circumference (β=−3·3 cm, 95 % CI −4·7, −1·8, P<0·001) and other obesity measures. Additionally, greater reductions were observed for total cholesterol (β=−0·33 mmol/l, 95 % CI −0·56, −0·10, P=0·005) and LDL cholesterol (β=−0·35 mmol/l, 95 % CI −0·56, −0·14, P=0·001). Dietary changes were significant for fibre intake (β=1·5 g/4184 kJ (1000 kcal), 95 % CI 0·3, 2·7, P=0·016). Compared with the control group, the intervention group reported a decrease in total minutes of physical activity (β=−573 min/week, 95 % CI −1126, −21, P=0·042) and showed improvements in the quality-of-life domains ‘health transition’ and ‘general health’.
Conclusions
MetSLIM was shown to be effective in improving waist circumference, total and LDL cholesterol, and quality of life among Dutch and Turkish individuals living in deprived neighbourhoods.
Peter Townsend argued that poverty could be scientifically measured as a ‘breakpoint’ within the income distribution below which participation collapses. This paper stands on Townsend's shoulders in measuring the level of poverty and participation by: (1) broadening his original measurement of participation; (2) using Structural Equation Modelling (SEM) in conjunction with a new dataset including 40,000 households (Understanding Society, 2011; 2013); and (3) taking into account the multi-cultural/ethnic nature of British society. We find that participation – defined as lack of deprivation, social participation and trust – reduces as income falls but stops doing so among the poorest 30 per cent of individuals. This may be indicating a minimum level of participation, a floor rather than a ‘breakpoint’ as suggested by Townsend, which has to be sustained irrespective of how low income is. Respondents with an ethnic minority background manifest lower levels of participation than white respondents but the relationship has a less linear pattern. Moreover, the floor detected for the overall population is also replicated when combining all respondents from ethnic groups.
The aim of this study was to compare patterns of cognitive decline in older Latinos and non-Latinos. At annual intervals for a mean of 5.7 years, older Latino (n=104) and non-Latino (n=104) persons of equivalent age, education, and race completed a battery of 17 cognitive tests from which previously established composite measures of episodic memory, semantic memory, working memory, perceptual speed, and visuospatial ability were derived. In analyses adjusted for age, sex, and education, performance declined over time in each cognitive domain, but there were no ethnic group differences in initial level of function or annual rate of decline. There was evidence of retest learning following the baseline evaluation, but neither the magnitude nor duration of the effect was related to Latino ethnicity, and eliminating the first two evaluations, during which much of retest learning occurred, did not affect ethnic group comparisons. Compared to the non-Latino group, the Latino group had more diabetes (38.5% vs. 25.0; χ2[1]=4.4; p=.037), fewer histories of smoking (24.0% vs. 39.4%, χ2[1]=5.7; p=.017), and lower childhood household socioeconomic level (−0.410 vs. −0.045, t[185.0]=3.1; p=.002), but controlling for these factors did not affect results. Trajectories of cognitive aging in different abilities are similar in Latino and non-Latino individuals of equivalent age, education, and race. (JINS, 2016, 22, 58–65)
Asians exhibit larger glycaemic response (GR) and insulin response (IR) than Caucasians, predisposing to an increased risk of type 2 diabetes mellitus (T2DM). We aimed to determine the GR and IR as well as the glycaemic index (GI) and insulinaemic index (II) of two rice varieties among three ethnic groups in Singapore. A total of seventy-five healthy males (twenty-five Chinese, twenty-five Malay and twenty-five Asian-Indians) were served the available equivalent carbohydrate amounts (50 g) of test foods (Jasmine rice and Basmati rice) and a reference food (glucose) on separate occasions. Postprandial blood glucose and plasma insulin concentrations were measured at fasting ( − 5 and 0 min) and at 15, 30, 45, 60, 90 and 120 min after food consumption. Using the trapezoidal rule, GR, IR, GI and II values were determined. The GR did not differ between ethnic groups for Jasmine rice and Basmati rice. The IR was consistently higher for Jasmine rice (P= 0·002) and Basmati rice (P= 0·002) among Asian-Indians, probably due to compensatory hyperinsulinaemia to maintain normoglycaemia. The GI and II of both rice varieties did not differ significantly between ethnicities. The overall mean GI for Jasmine rice and Basmati rice were 91 (sd 21) and 59 (sd 15), respectively. The overall mean II for Jasmine rice was 76 (sd 26) and for Basmati rice was 57 (sd 24). We conclude that the GI values presented for Jasmine rice and Basmati rice were applicable to all three ethnic groups in Singapore. Future studies should include deriving the II for greater clinical utility in the prevention and management of T2DM.
To determine the breast-feeding pattern of four main ethnic groups (the Han, Uygur, Tibetan and Zhuang) living in rural western China.
Design
The study utilized a cross-sectional design.
Setting
Forty-five counties in ten provinces in western China in 2005.
Subjects
A sample of 11 783 children younger than 36 months old (8960 Han, 1281 Uygur, 792 Tibetan and 750 Zhuang) and their mothers were recruited using a stratified, multistage, cluster random sampling method.
Results
The rates of exclusive breast-feeding of children at 6 months of age in the Han, Uygur, Tibetan and Zhuang ethnic groups were 11·6 %, 0·8 %, 4·4 % and 13·8 %, respectively. The rates of any breast-feeding for children at 24 months of age were 8·5 %, 25·7 %, 3·0 % and 4·3 % in the four ethnic groups, respectively. After adjusting for related factors, Zhuang children had a higher odds ratio of exclusive breast-feeding to 6 months compared with Han children, whereas Uygur and Tibetan children had lower odds ratio (Zhuang: OR=1·291; 95 % CI 1·006, 1·657; Uugur: OR=0·062; 95 % CI 0·032, 0·121; Tibetan: OR=0·323; 95 % CI 0·220, 0·475). Uygur children had a lower hazard ratio of discontinued breast-feeding compared with Han children, whereas Tibetan children had a higher hazard ratio (Uygur: HR=0·368; 95 % CI 0·333, 0·408; Tibetan: HR=1·366; 95 % CI 1·244, 1·500).
Conclusions
The breast-feeding pattern differed among the Han, Uygur, Tibetan and Zhuang ethnic groups. The results suggest that health education regarding the benefits of breast-feeding is needed in rural western China.
Positive psychology has identified six virtues comprising 24 character strengths of humans. This study examines the relationships among these character strengths, including Happiness, Life Purpose and Life Satisfaction as valued by Singapore Chinese, Malays, Indians and Other Asians and Caucasians. A sample of Singapore adults (N = 304) completed an online survey in English comprising four measures, the Values in Action Inventory of Strengths, the Orientations to Happiness Scale, the Satisfaction with Life Scale and the Life Engagement Test. Results show that Zest, Hope, Curiosity, Capacity to Love and Gratitude are the top five character strengths of the sampled Singaporeans. Happiness orientation through pursuing a Life of Meaning is preferred by all four ethnic groups. Ethnic differences are found for character strengths of Kindness, Humour, Gratitude, and Religiousness and Spirituality. Life of Meaning and Life of Engagement, Happiness orientations and character strengths of Curiosity and Perseverance are direct predictors of Life Purpose. In turn, Life Purpose and character strengths of Capacity to Love and Gratitude are found to be direct predictors of Life Satisfaction. Despite its other limitations, this study lays the groundwork for future studies using more robust sampling strategies and greater participation from the major ethnic groups in Singapore.