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Edited by
Rob Waller, NHS Lothian,Omer S. Moghraby, South London & Maudsley NHS Foundation Trust,Mark Lovell, Esk and Wear Valleys NHS Foundation Trust
Well-connected systems that safely and ethically share information have a lot of potential to improve care and safety. Due to systems having developed organically and over long periods of time, the reality today is more piecemeal. There are several current initiatives to develop and improve the situation; the main barriers are often managerial or ethical rather than technical. Increasingly, the focus is on moving data out of big silos like hospitals to places where it can be accessed (when appropriate) by others.
In this chapter, women’s expectations and plans for motherhood are followed, using qualitative, longitudinal interview data collected in the UK between 2017 and 2019. Their narrations are compared to key experiences from the original motherhood study conducted 21 years earlier. In both motherhood studies, familiarity with normative constructions of ‘good’ motherhood is apparent well before pregnancy. But in the contemporary study, these are now also informed by limitless digital resources, such as social media platforms, forums and applications (apps). The average age for first-time motherhood in the UK has increased so that women have longer established work biographies and career histories before experiencing maternal subjectivity. In this antenatal period, the women draw upon strands of different discourse to narrate pregnancy and their preparations for motherhood, including managing a pregnant body, plans for birth and a return to the workplace. Generational changes are also invoked, alongside hopes that grandparents will help fill anticipated childcare gaps, easing the financial burden of working parenthood. The discourse of ‘balance’ and ‘balancing work and family life’ is used to describe plans for managing working motherhood/parenthood, which either seem possible from this pre-baby vantage point or, for some, are already provoking a sense of anxiety.
This chapter sets the broader context for the book, which repeats a study on transition to first-time motherhood undertaken 21 years earlier. It asks what a new study on motherhood can tell us about how expectations and experiences are configured in harsher neoliberal conditions and digital landscapes that can empower and individually and experientially, undermine. In this first chapter, the context against which contemporary motherhood is experienced is compared to the earlier study. This chapter will also provide the theoretical and conceptual framework for the book through a focus on definitions and debates around motherhood and narrative construction, gender, and contextual, structural factors. The methodological details of the two qualitative longitudinal studies (which use the same research design) on transition to first-time motherhood are outlined in this chapter, setting the scene for the data presented in Chapters 2, 3 and 4. The chapter asks if it has ever been a more challenging time to be a woman who is also a mother.
LGBTQIA+ patients are an important patient population to highlight when discussing urban emergency medicine. There are a multitude of terms regarding gender expression and identity that emergency medicine providers should familiarize themselves with if they plan on taking care of this patient population. Within the LGBTQIA+ population, there are specific medical and psychological issues that are relevant to each subgroup. Providers are not expected to know everything about their patients, but they must remember to remain open-minded and non-judgmental as they take care of everyone with precision and dedication. If a provider feels that the patient needs help in ways they cannot be of service, then the provider should be able to point the patient in the right direction via resources and referrals.
This chapter considers how the Internet (and technology more widely) affects sex, including online pornography use, internet sex addiction, and dating apps. Practical advice on safe use of the Internet for dating is given. Advice for parents on the importance of open two-way discussion with children about online risks is covered.
When life throws you a problem, the solution our contemporary market moment proffers tends to be some sort of phone-based computer program, that is, an app. In this chapter, the authors take a look at apps designed to manage menstrual cycles. In so doing, the authors show that apps tend to individualize a problem, prize forms of efficiency and normative ideas of gender, all with a mystifying veneer of utopian market optimization and self-help. What’s interesting for us is the way that apps can individualize the problems they’re trying to solve and in so doing often seek to assist people in enhancing their human capital. The authors close with a contrast to anticapitalist punks seeking not individual optimization but collective liberation. In turn these punks offer those who menstruate a liberatory relationship with their own bodies.
Digital CBT refers to the use of digital tools, platforms or devices to deliver or enhance cognitive behavioural therapy assessment, formulation, treatment, training and supervision. The ‘Advances in Digital CBT’ special issue aimed to document examples of innovative digital CBT practice in this rapidly developing field. In this paper, we have briefly summarised and synthesised the advances demonstrated in this group of articles. These include developments in our understanding of mental health apps, the use of digital tools as an adjunct to therapy, the effectiveness of remotely delivered CBT in routine clinical practice, our understanding of user experiences and involvement, and in digital CBT research methods. We consider the extent of current knowledge in these areas and identify where gaps in evidence lie and how the field could be taken forward to address these. Lastly, we reflect on the broader digital CBT picture and offer our suggestions of six key directions for future research: using robust study designs to evaluate and optimise digital tools; translating and culturally adapting digital tools and practices; understanding and addressing digital exclusion; exploring, reporting and addressing possible negative effects; improving user involvement in design and evaluation; and addressing the implementation gap for digital tools. We suggest that further advances in these areas would be of particular benefit to the digital CBT field.
Key learning aims
(1) To gain an overview of the articles in the special issue and an understanding of the advances in digital CBT they represent.
(2) To understand how the advances suggested by the present studies could be taken forward and extended.
(3) To consider key future directions for further advances in digital CBT.
The use of digital technologies in healthcare is changing how medical treatments are developed by researchers, delivered by medical professionals and experienced by patients. This chapter argues that a defining feature of this disruption is the emergence of medical apps that leverage algorithm-based AI systems. As the use of such apps and AI wearables goes mainstream and new players – notably ‘Super Platforms’ with digital rather than medical expertise – enter the healthcare sector, traditional medical services will be transformed.
These developments pose several challenges for regulators and policymakers, most obviously in terms of privacy and data protection. Here, we examine how the emerging field of Legal Design can provide a more transparent infrastructure that embeds relevant legal protections in the user interfaces of healthcare products and services. A Privacy-by-Design approach focused on the user interface (UI) offers several advantages, most obviously greater transparency, accountability and human choice. The chapter offers real-world examples of design patterns that illustrate the value of UI-focused Privacy-by-Design in protecting sensitive information, enabling people to retain control of their personal data. The chapter concludes with some examples and reflects on the challenges in implementing Legal Design in an eHealth context.
Mental health clinicians perform complex tasks with patients that potentially could be improved by the massive computing power available through mobile apps. This study aimed to analyse commercially available mobile and computer applications (apps) focused on treating psychiatric disorders. Apps were analysed by two independent raters for whether they took advantage of computer power to process data in a fashion that augments four main elements of clinical treatment including (1) assessment/diagnosis, (2) treatment planning, (3) treatment fidelity monitoring, and (4) outcome tracking. The evidence base for each of these apps was also explored via PsychINFO, Research Gate and Google Scholar. Searches of the Google Play Store, the Apple App Store, and the One Mind PsyberGuide found 722 apps labelled for mental health use, of which 163 apps were judged relevant to clinical work with patients with psychiatric disorders. Fifty-nine of these were determined to contain a computer-driven function for at least one of the four main elements of clinical treatment. The most common element was assessment/diagnosis (55/59 apps), followed by outcome tracking (34/59 apps). Six apps updated treatment plans using user input. Only one app tracked treatment fidelity. None of the apps contained computer-driven functions for all four elements. Twelve apps were supported in randomized clinical trials to show greater efficacy compared with either wait-list or other active treatments. Results showed that these four clinical elements can be meaningfully augmented, but the full potential of computer processing appears unreached in mental health-related apps.
Key learning aims
(1) To understand what apps are currently available to treat clinical-level psychiatric problems.
(2) To understand how many of the commercially available mental health-focused apps can be used for the treatment of clinical populations.
(3) To understand how mental health services can be complemented by utilizing computer processing power within apps.
Mental health (MH) apps can be used as adjunctive tools in traditional face-to-face therapy to help implement components of evidence-based treatments. However, practitioners interested in using MH apps face a variety of challenges, including knowing which apps would be appropriate to use. Although some resources are available to help practitioners identify apps, granular analyses of how faithfully specific clinical skills are represented in apps are lacking. This study aimed to conduct a review and analysis of MH apps containing a core component of cognitive behaviour therapy (CBT) – cognitive restructuring (CR). A keyword search for apps providing CR functionality on the Apple App and Android Google Play stores yielded 246 apps after removal of duplicates, which was further reduced to 15 apps following verification of a CR component and application of other inclusionary/exclusionary criteria. Apps were coded based on their inclusion of core elements of CR, and general app features including app content, interoperability/data sharing, professional involvement, ethics, and data safeguards. They were also rated on user experience as assessed by the Mobile App Rating Scale (MARS). Whereas a majority of the CR apps include most core CR elements, they vary considerably with respect to more granular sub-elements of CR (e.g. rating the intensity of emotions), other general app features, and user experience (average MARS = 3.53, range from 2.30 to 4.58). Specific apps that fared best with respect to CR fidelity and user experience dimensions are highlighted, and implications of findings for clinicians, researchers and app developers are discussed.
Key learning aims
(1) To identify no-cost mobile health apps that practitioners can adopt to facilitate cognitive restructuring.
(2) To review how well the core elements of cognitive restructuring are represented in these apps.
(3) To characterize these apps with respect to their user experience and additional features.
(4) To provide examples of high-quality apps that represent cognitive restructuring with fidelity and facilitate its clinical implementation.
There remains a persistent need for mental health services among youth, with the majority of youth untreated. Digital mental health interventions (DMHIs) have the potential to revolutionize mental health care for adolescents. DMHIs are digital tools aiding in detection, prevention, and treatment of mental health problems for adolescents. DMHIs provide interventions and services that are accessible, low-cost, and available to adolescents. This chapter discusses barriers to mental health care among adolescents, followed by a discussion of how DMHIs can address these barriers to improve access to and quality of adolescent mental health services. It reviews research on DMHIs and digital frameworks used to collect and deliver psychoeducation, assessment, and interventions across hardware (e.g., smartphones, computers) and modalities (e.g., online, text, apps). It concludes with a discussion of current limitations of DMHIs and directions for the field to improve the development, dissemination, and implementation of adolescent mental health care using DMHIs.
Smartphones can facilitate patients completing surveys and collecting sensor data to gain insight into their mental health conditions. However, the utility of sensor data is still being explored. Prior studies have reported a wide range of correlations between passive data and survey scores.
Aims
To explore correlations in a large data-set collected with the mindLAMP app. Additionally, we explored whether passive data features could be used in models to predict survey results.
Method
Participants were asked to complete daily and weekly mental health surveys. After screening for data quality, our sample included 147 college student participants and 270 weeks of data. We examined correlations between six weekly surveys and 13 metrics derived from passive data features. Finally, we trained logistic regression models to predict survey scores from passive data with and without daily surveys.
Results
Similar to other large studies, our correlations were lower than prior reports from smaller studies. We found that the most useful features came from GPS, call, and sleep duration data. Logistic regression models performed poorly with only passive data, but when daily survey scores were included, performance greatly increased.
Conclusions
Although passive data alone may not provide enough information to predict survey scores, augmenting this data with short daily surveys can improve performance. Therefore, it may be that passive data can be used to refine survey score predictions and clinical utility may be derived from the combination of active and passive data.
This chapter discusses results for user-facing services that show whether the services show biases towards specific groups of users, whether they comply with policies, laws, and regulations, and how they use user data in providing their services. The chapter first focuses on network-level services, such as server-side blocking and the provision of wireless internet access. Then, the chapter discusses web-based services, including privacy policies, search, social networks, and e-commerce. The chapter closes by discussing results for mobile services, such as the characteristics of app stores, third-party libraries, and apps.
Schools are the keepers of personal and sensitive data which is provided at the time of enrolment and entrusted to the school. As the student progresses through his or her academic years, further information and performance data are collected and stored in order to best gauge the position of the student and provide support. Some of this information is for administrative purposes while other data is collected to track achievement or bring attention to a particular area of need. With the convenience and space available for online and cloud storage of student data, teachers have an increased responsibility towards protecting personal information. This information can typically include names, addresses, religious affiliations, nationality, date of birth, behavioural notes and medical information. Photographs, video clips, and online and hard-copy documents used in schools also fit the criteria of personal information (Australian Law Reform Commission, ). Personal information is not limited to students as it can also apply to staff, volunteers, contractors, parents and others who are connected to the school.
Drawing upon the GKC framework, this chapter presents an ethnographic study of Woebot – a therapy chatbot designed to administer a form of cognitive behavioral therapy (“CBT”). Section 3.1 explains the methodology of this case study. Section 3.2 describes the background contexts that relate to anxiety as a public health problem. These include the nature of anxiety and historical approaches to diagnosing and treating it, the ascendency of e-Mental Health therapy provided through apps, and relevant laws and regulations. Section 3.3 describes how Woebot was developed and what goals its designers pursued. Section 3.4 describes the kinds of information that users share with Woebot. Section 3.5 describes how the designers of the system seek to manage this information in a way that benefits users without disrupting their privacy.
Predicting and preventing relapse presents a crucial opportunity and first step to improve outcomes and reduce the care gap for persons living with schizophrenia. Using commercially available smartphones and smartwatches, technology now affords opportunities to capture real-time and longitudinal profiles of patients’ symptoms, cognition, physiology and social patterns. This novel data makes it possible to explore relationships between behaviours, physiology and symptoms, which may yield personalised relapse signals.
Aims
Smartphone Health Assessment for Relapse Prevention (SHARP), an international mental health research study supported by the Wellcome Trust, will inform the development of a scalable and sharable digital health solution to monitor personal risk of relapse. The resulting technology will be studied toward predicting and preventing relapse among individuals diagnosed with serious mental illness.
Method
SHARP is a two-phase study with research sites in Boston, Massachusetts, and Bangalore and Bhopal, India. During phase 1, focus groups will be conducted at each study site to collect feedback on the design and features available on mindLAMP, a digital health platform. Individuals with serious mental illness will use mindLAMP for the duration of a year during phase 2.
Results
The results of the research outlined in this protocol will guide the development of technology and digital tools to help address pervasive challenges in global mental health.
Conclusions
The digital tools developed as a result of this study, and participants’ experiences using them, may offer insight into opportunities to expand digital mental health resources and optimize their utilisation around the world.
The effective management of chronic asthma requires long-term adherence to both pharmacotherapy and optimal self-management practices. The use of mobile applications (apps) offer a promising and cost-effective platform to support the self-management of asthma. However, students as consumers may not always be sufficiently knowledgeable to select the best app to link with the management of their condition. If school psychologists become familiar with apps, they may be better positioned to provide guidance to students about app selection and how to identify apps that include appropriate behaviour change techniques (BCT). Accordingly, the overall aim of this study was to present a method by which school psychologists could identify quality apps for the purpose of supporting students who need to self-manage chronic asthma. A directed content analysis was used to evaluate asthma apps, based on behaviour change content and app quality. A systematic selection process yielded a total of 36 apps (26 from iTunes, 12 from Google Play) that were evaluated using two published rating measures. Overall, apps contained limited BCTs and a low level of quality health information. Conversely, apps with higher quality health information utilised a larger range of BCTs than lower quality apps. It was concluded that while apps designed to support the management of asthma appear to be a potentially valuable addition to traditional interventions, the technology is still in its infancy, and school psychologists should be aware of the limited behaviour change content, age appropriateness of apps, and whether the health information provided is evidence-based.
Although apps are increasingly being used to support the diagnosis, treatment and management of mental illness, there is no single means through which costs associated with mental apps are being reimbursed. Furthermore, different apps are amenable to different means of reimbursement as not all apps generate value in the same way.
Aims
To provide insights into how apps are currently generating value and being reimbursed across the world, with a particular focus on the situation in the USA.
Method
An international team performed secondary research on how apps are being used and on common pathways to remuneration.
Results
The uses of apps today and in the future are reviewed, the nature of the value delivered by apps is summarised and an overview of app reimbursement in the USA and other countries is provided. Recommendations regarding how payments might be made for apps in the future are discussed.
Conclusions
Currently, apps are being reimbursed through channels with other original purposes. There may be a need to develop an app-specific channel for reimbursement which is analogous to the channels used for devices, drugs and laboratory tests.
User experience (UX) plays a key role in uptake and usage of mental health smartphone interventions, yet remains underinvestigated. This review aimed to characterize and compare UX evaluation approaches that have been applied in this specific context, and to identify implications for research and practice.
Methods
A narrative review was conducted of UX-themed studies published in PubMed, PsycINFO, and Scopus up to February 2019. Eligible studies reported on data reflecting users' interactions with a smartphone intervention for any mental health condition. Studies were categorized into “situated” versus “construct-based” methods according to whether or not an established UX construct was used to acquire and analyze data.
Results
Situated approaches used bespoke UX metrics, including quantitative measures of usage and performance, as well as grounded interview data. Construct-based approaches such as assessments of usability and acceptability were based on conceptual frameworks, with methodologically stronger versions featuring construct definitions, validated measurement tools, and an ability to compare data across studies. Constructs and measures were sometimes combined to form bespoke construct-based approaches.
Conclusions
Both situated and construct-based UX data may provide benefits during design and implementation of a mental health smartphone intervention by helping to clarify the needs of users and the impact of new features. Notable however was the omission of UX methods, such as split testing. Future research should consider these unaddressed methods, aim to improve the rigor of UX assessment, integrate their use alongside clinical outcomes, and explore UX assessment of more complex, adaptive interventions.