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Hospital, hospice, or home: A scoping review of the importance of place in pediatric palliative care

Published online by Cambridge University Press:  26 June 2023

Meaghan Walker Open the ORCID record for Meaghan Walker [Opens in a new window] ,
Danielle Nicolardi ,
Téa Christopoulos  and
Timothy Ross
Meaghan Walker*
Affiliation:
Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada
Danielle Nicolardi
Affiliation:
Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada
Téa Christopoulos
Affiliation:
Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada
Timothy Ross
Affiliation:
Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada Department of Geography & Planning, University of Toronto, Toronto, Canada Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada
*
Corresponding author: Meaghan Walker; Email: meaghan.walker@hollandbloorview.ca
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Abstract

Background

Palliative care necessitates questions about the preferred place for delivering care and location of death. Place is integral to palliative care, as it can impact proximity to family, available resources/support, and patient comfort. Despite the importance of place, there is remarkably little literature exploring its role in pediatric palliative care (PPC).

Objectives

To understand the importance and meaning of place in PPC.

Methods

We conducted a scoping review to understand the importance of place in PPC. Five databases were searched using keywords related to “pediatric,” “palliative,” and “place.” Two reviewers screened results, extracted data, and analyzed emergent themes pertaining to place.

Results

From 3076 search results, we identified and reviewed 25 articles. The literature highlights hospital, home, and hospice as 3 distinct PPC places. Children and their families have place preferences for PPC and place of death, and a growing number prefer death to occur at home. Results also indicate numerous factors influence place preferences (e.g., comfort, grief, cultural/spiritual practices, and socioeconomic status).

Significance of results

Place influences families’ PPC decisions and experiences and thus warrants further study. Greater understanding of the importance and roles of place in PPC could enhance PPC policy and practice, as well as PPC environments.

Keywords

Palliative carePlaceChildrenPediatricHealth care
Type
Review Article
Information
Palliative & Supportive Care , Volume 21 , Issue 5 , October 2023 , pp. 925 - 934
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Copyright
© The Author(s), 2023. Published by Cambridge University Press.

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