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The experience of being next of kin to an older person in the last phase of life

Published online by Cambridge University Press:  18 February 2010

Magdalena Andersson ,
Anna K. Ekwall ,
Ingalill R. Hallberg  and
Anna-Karin Edberg
Magdalena Andersson*
Affiliation:
Department of Health Sciences and the Vårdal Institute, Lund, Sweden
Anna K. Ekwall
Affiliation:
Department of Health Sciences and the Vårdal Institute, Lund, Sweden
Ingalill R. Hallberg
Affiliation:
Department of Health Sciences and the Vårdal Institute, Lund, Sweden
Anna-Karin Edberg
Affiliation:
Department of Health Sciences and the Vårdal Institute, Lund, Sweden
*
Address correspondence and reprint requests to: Magdalena Andersson, Eslövs kommun, SE-241 80 Eslöv, Sweden. E-mail: magdalena.andersson@eslov.se
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Abstract

Objective:

The aim of the study was to investigate the experience of being next of kin to an older person in the last phase of life as narrated after the older person's death.

Method:

Qualitative interviews were performed with the next of kin (n = 17) to people aged 75 years and older who had recently died and had received help and/or care from the municipality in the last phase of life. Eleven women and six men participated, of whom seven were spouses, nine were children, and one was a grandchild. The interviews were analysed using qualitative content analysis.

Results:

The experience of the next of kin could be understood as being a devoted companion during the transition toward the inevitable end, embracing the categories of living in the shadow of death; focusing on the needs of the dying person, making adjustments to everyday life; feeling the major responsibility; struggling with the health and social care system; and gaining strength from support.

Significance of results:

Being next of kin to an old person at the end of life means being a devoted companion during the transition toward the inevitable end, including the feeling of bearing the major responsibility and the need to be acknowledged by professionals. This study points to the importance of having access to professional care when it is needed, to complement and support the next of kin when his or her own resources and strength falter. This also includes support to enable the next of kin to remain involved in the care of his or her loved ones, thereby fulfilling their own wishes.

Keywords

RelativesFrail elderlyPalliative careQualitative research

Information

Type
Original Articles
Information
Palliative & Supportive Care , Volume 8 , Issue 1 , March 2010 , pp. 17 - 26
Copyright
Copyright © Cambridge University Press 2010

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