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Factors influencing quality of life in children with tracheostomy with emphasis on home care visits: a multi-centre investigation

Published online by Cambridge University Press:  12 September 2022

B Mirza ,
A Marouf Open the ORCID record for A Marouf [Opens in a new window] ,
F Abi Sheffah ,
O Marghlani ,
J Heaphy ,
A Alherabi ,
F Zawawi Open the ORCID record for F Zawawi [Opens in a new window] ,
I Alnoury  and
T Al-Khatib
B Mirza
Affiliation:
Department of Otolaryngology – Head and Neck Surgery, Faculty of Medicine, King Abdulaziz University, Jeddah
A Marouf*
Affiliation:
Department of Surgery, Otolaryngology – Head and Neck Surgery Section, King Faisal Specialist Hospital and Research Centre, Jeddah
F Abi Sheffah
Affiliation:
Department of Surgery, Otolaryngology – Head and Neck Surgery Section, King Faisal Specialist Hospital and Research Centre, Jeddah
O Marghlani
Affiliation:
Department of Surgery, Otolaryngology – Head and Neck Surgery Section, King Faisal Specialist Hospital and Research Centre, Jeddah Department of Otolaryngology – Head and Neck Surgery, College of Medicine, Umm Al-Qura University, Makkah, Saudi Arabia
J Heaphy
Affiliation:
Department of Surgery, Otolaryngology – Head and Neck Surgery Section, King Faisal Specialist Hospital and Research Centre, Jeddah
A Alherabi
Affiliation:
Department of Surgery, Otolaryngology – Head and Neck Surgery Section, King Faisal Specialist Hospital and Research Centre, Jeddah Department of Otolaryngology – Head and Neck Surgery, College of Medicine, Umm Al-Qura University, Makkah, Saudi Arabia
F Zawawi
Affiliation:
Department of Otolaryngology – Head and Neck Surgery, Faculty of Medicine, King Abdulaziz University, Jeddah
I Alnoury
Affiliation:
Department of Otolaryngology – Head and Neck Surgery, Faculty of Medicine, King Abdulaziz University, Jeddah
T Al-Khatib
Affiliation:
Department of Otolaryngology – Head and Neck Surgery, Faculty of Medicine, King Abdulaziz University, Jeddah Department of Surgery, Otolaryngology – Head and Neck Surgery Section, King Faisal Specialist Hospital and Research Centre, Jeddah
*
Author for correspondence: Dr A Marouf, Department of Surgery, Otolaryngology – Head and Neck Surgery Section, King Faisal Specialist Hospital and Research Centre, Prince Saud Al Faisal Street, Jeddah 11211, Saudi Arabia E-mail: axm1676@case.edu
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Abstract

Objective

Only a few studies have assessed the quality of life in children with tracheostomies. This study aimed to evaluate the quality of life and the factors influencing it in these children.

Method

This cross-sectional, two-centre study was conducted on paediatric patients living in the community with a tracheostomy by using the Pediatric Quality of Life Inventory. Clinical and demographic information of patients, as well as parents’ socioeconomic factors, were obtained.

Results

A total of 53 patients met our inclusion criteria, and their parents agreed to participate. The mean age of patients was 6.85 years, and 21 patients were ventilator-dependent. The total paediatric health-related quality of life score was 59.28, and the family impact score was 68.49. In non-ventilator-dependent patients, multivariate analyses indicated that social functioning and health-related quality of life were negatively affected by the duration of tracheostomy. The Quality of Life of ventilator-dependent patients was influenced by care visits and the presence of pulmonary co-morbidities.

Conclusion

Children with tracheostomies have a lower quality of life than healthy children do. Routine care visits by a respiratory therapist and nurses yielded significantly improved quality of life in ventilator-dependent children.

Keywords

TracheostomyQuality Of LifeLanguage Development
Type
Main Article
Information
The Journal of Laryngology & Otology , Volume 137 , Issue 10 , October 2023 , pp. 1102 - 1109
Copyright
Copyright © The Author(s), 2022. Published by Cambridge University Press on behalf of J.L.O. (1984) LIMITED

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Footnotes

*

Co-first author

Dr A Marouf takes responsibility for the integrity of the content of the paper

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