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The effect of nursing care and follow-up for mothers of infants undergoing congenital heart surgery: a quasi-experimental study

Published online by Cambridge University Press:  20 September 2022

Ayşe Ay Open the ORCID record for Ayşe Ay [Opens in a new window]  and
Gülten Koç
Ayşe Ay*
Affiliation:
Nursing Department, Faculty of Health Sciences, Başkent University, Ankara, Turkey
Gülten Koç
Affiliation:
Obstetrics and Gynecologic Nursing Department, Faculty of Nursing, Hacettepe University, Ankara, Turkey
*
Author for correspondence: Ayşe Ay, RN, PhD, Assistant Professor, Nursing Department, Faculty of Health Sciences, Başkent University, Ankara, Turkey. Tel: +905073560214; Fax: +90312 2466676. E-mail: ayse0526@gmail.com
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Abstract

Improvements in congenital heart surgery have resulted in an increasing number of infants surviving, but there remain concerns about home care and difficulties experienced by mothers. This study was designed to evaluate the effect of nursing care and follow-up for the mothers of infants undergoing congenital heart surgery on anxiety, care burden, and self-efficacy. The study was designed as a quasi-experimental study with a pre-test and post-test control group design. The study included 40 mothers whose infants had undergone congenital heart surgery. Nursing care was provided to the mothers of the infants included in the study group through a total of six home follow-ups until the third month after surgery, guided by the North American Nursing Diagnosis Association and Nursing Diagnosis System and Nursing Interventions Classification. Data were collected through Care Needs Identification Form, Spielberger’s State-Trait Anxiety Inventory, Zarit Burden Interview, and Parental Self-efficacy Scale. The mean State-Trait Anxiety Inventory and Zarit Burden Interview scores for the mothers in the intervention group decreased, while the mean Parental Self-efficacy Scale scores increased as the follow-up progressed and it was determined that by the third month, the difference between the mothers in the intervention group and those in the control group in terms of post-test State-Trait Anxiety Inventory, Zarit Burden Interview, and Parental Self-efficacy Scale had become statistically significant. Providing appropriate nursing care practices to the mothers of the infants had undergone congenital heart surgery in home setting has the potential to decrease the problems experienced by the mothers.

Keywords

Anxietycare burdencongenital heart diseasenursing carenursing follow-upself-efficacy
Type
Original Article
Information
Cardiology in the Young , Volume 33 , Issue 9 , September 2023 , pp. 1649 - 1656
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Copyright
© The Author(s), 2022. Published by Cambridge University Press

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References

Hockenberry, M, Wilson, D, Rodgers, CC. Wong’s Essentials of Pediatric Nursing. Elsevier, 2017.Google Scholar
Virani, SS, Alonso, A, Benjamin, EJ, et al. Heart disease and stroke statistics—2020 update: a report from the American Heart Association. Circulation 2020; 141: e139–e596.10.1161/CIR.0000000000000757CrossRefGoogle ScholarPubMed
TÜİK. Turkish Statistical Institute: Birth Statistics 2017, http://tuik.gov.tr/PreHaberBultenleri.do?id=246472017.Google Scholar
March, S. Parents’ perceptions during the transition to home for their child with a congenital heart defect: how can we support families of children with hypoplastic left heart syndrome? J Spec Pediatr Nurs 2017; 22: e12185.10.1111/jspn.12185CrossRefGoogle ScholarPubMed
Gaskin, KL. Patterns of transition experience for parents going home from hospital with their infant after first stage surgery for complex congenital heart disease. J Pediatr Nurs 2018; 41: 23–32.10.1016/j.pedn.2017.11.013CrossRefGoogle ScholarPubMed
Fischer, AL, Butz, C, Nicholson, L, Blankenship, A, Dyke, P, Cua, CL. Caregiver anxiety upon discharge for neonates with congenital heart disease. Congenit Heart Dis 2012; 7: 41–45.10.1111/j.1747-0803.2011.00600.xCrossRefGoogle ScholarPubMed
Bektas, İ., Kır, M, Yıldız, K, Genç, Z, Bektas, M, Ünal, N. Symptom frequency in children with congenital heart disease and parental care burden in predicting the quality of life of parents in Turkey. J Pediatr Nurs 2020; 53: e211–e216.10.1016/j.pedn.2020.04.012CrossRefGoogle ScholarPubMed
Wray, J, Brown, K, Tregay, J, Crowe, S, Knowles, R, Bull, K. Parents’ experiences of caring for their child at the time of discharge after cardiac surgery and during the postdischarge period: qualitative study using an online forum. J Med Internet Res 2018; 20: e9104.10.2196/jmir.9104CrossRefGoogle ScholarPubMed
Sabzevari, S, Nematollahi, M. The burden of care: mothers’ experiences of children with congenital heart disease. Int J Commun-based Nurs Midwifery 2016; 4: 374–385.Google ScholarPubMed
Ni, ZH, Lv, HT, Ding, S, Yao, WY. Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: a qualitative descriptive study. PloS One 2019; 14: e0213154.10.1371/journal.pone.0213154CrossRefGoogle ScholarPubMed
Edraki, M, Kamali, M, Beheshtipour, N, Amoozgar, H, Zare, N, Montaseri, S. The effect of educational program on the quality of life and self-efficacy of the mothers of the infants with congenital heart disease: a randomized controlled trial. Int J Commun-based Nurs Midwifery 2014; 2: 51.Google ScholarPubMed
Uhm, JY, Kim, HS. Impact of the mother-nurse partnership programme on mother and infant outcomes in paediatric cardiac intensive care unit. Intens Crit Care Nur 2019; 50: 79–87.10.1016/j.iccn.2018.03.006CrossRefGoogle ScholarPubMed
Cruz, AC, Aranha, GA, Silva, CMC, Pedreira, MLG. The complexity of having a child with a congenital heart defect in a developing country: a qualitative study of parental needs. J Pediatr Nurs 2021 Google Scholar
Wu, X, Li, Q, Chen, J. Discharge planning for children with ventricular septal defect and pulmonary arterial hypertension in China. Int J Nurs Sci 2015; 2: 167–172.Google Scholar
Ni, Z, Chao, Y, Xue, X. An empowerment health education program for children undergoing surgery for congenital heart diseases. J Child Health Care 2016; 20: 354–364.10.1177/1367493515587057CrossRefGoogle ScholarPubMed
Fleck, DA, Marino, BS, Costello, JM, et al. The REACH protocol: an innovative strategy for home management of infants with complex CHD. Cardiol Young 2018; 28: 961–967.10.1017/S1047951118000604CrossRefGoogle ScholarPubMed
Cooper, BM, Marino, BS, Fleck, DA, et al. Telehealth home monitoring and postcardiac surgery for congenital heart disease. Pediatrics 2020; 146.Google Scholar
Hartman, DM, Medoff-Cooper, B. Transition to home after neonatal surgery for congenital heart disease. MCN. Am J Matern Child Nurs 2012; 37: 95–100.10.1097/NMC.0b013e318241dac1CrossRefGoogle ScholarPubMed
Pye, S, Green, A. Parent education after newborn congenital heart surgery. Adv Neonat Care 2003; 3: 147–156.Google ScholarPubMed
Öztürk, MO, Uluşahin, A. Mental Health and Disorders. Nobel Tıp Press, 2014.Google Scholar
İnci, FH, Erdem, M. Validity and reliability of Turkish version the caregiver burden scale. J Ataturk Nurs School 2008; 11: 85–95.Google Scholar
Kılıçaslan, A. The investigation of transition to parenthood in terms of several pre-partum and post-partum factors, 2007, PhD Thesis. University of Istanbul, Istanbul.Google Scholar
International NANDA. Definitions and Classification. Wiley, 2014.Google Scholar
Davis, LL. Instrument review: getting the most from a panel of experts. Appl Nurs Res 1992; 5: 194–197.10.1016/S0897-1897(05)80008-4CrossRefGoogle Scholar
McMahon, E, Chang, YS. From surviving to thriving-parental experiences of hospitalised infants with congenital heart disease undergoing cardiac surgery: a qualitative synthesis. J Pediatr Nurs 2020; 51: 32–41.10.1016/j.pedn.2019.12.010CrossRefGoogle ScholarPubMed
Poudel, P, Malla, C. Knowledge of mothers regarding home care of children undergone cardiac surgery with a view to develop an information booklet. Med Phoenix 2017; 2: 38–43.10.3126/medphoenix.v2i1.18384CrossRefGoogle Scholar
Çınar, S, Koc, G. The effect of nursing care provided to Turkish mothers of infants born with cleft lip and palate on maternal attachment and self-efficacy: a quasi-experimental study. J Pediatr Nurs 2020; 53: e80–e86.10.1016/j.pedn.2020.02.032CrossRefGoogle ScholarPubMed
Re, JM, Dean, S, Mullaert, J, Guedeney, A, Menahem, S. Maternal distress and infant social withdrawal (ADBB) following infant cardiac surgery for congenital heart disease. World J Pediatr Congenit Heart Surg 2018; 9: 624–637.10.1177/2150135118788788CrossRefGoogle ScholarPubMed
Rahimianfar, AA, Forouzannia, SK, Sarebanhassanabadi, M, Dehghani, H, Namayandeh, SM, Khavary, Z. Anxiety determinants in mothers of children with congenital heart diseases undergoing cardiac surgery. Adv Biomed Res 2015; 4: 255.Google ScholarPubMed
Strange, G, Stewart, S, Farthing, M, Kasparian, NA, Selbie, L, O’Donnell, C. Living with, and caring for, congenital heart disease in Australia: insights from the Congenital Heart Alliance of Australia and New Zealand Online Survey. Heart Lung Circ 2020; 29: 216–223.10.1016/j.hlc.2018.12.009CrossRefGoogle ScholarPubMed
Lumsden, MR, Smith, DM, Wittkowski, A. Coping in parents of children with congenital heart disease: a systematic review and meta-synthesis. J Child Fam Stud 2019; 28: 1736–1753.10.1007/s10826-019-01406-8CrossRefGoogle Scholar