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Assessment and management of feeding difficulties for infants with complex CHD

Published online by Cambridge University Press:  23 December 2022

Hema Desai Open the ORCID record for Hema Desai [Opens in a new window] ,
Courtney E. Jones Open the ORCID record for Courtney E. Jones [Opens in a new window] ,
Jennifer L. Fogel ,
Karli A. Negrin ,
Nancy L. Slater ,
Kimberly Morris ,
Lisa R. Doody ,
Katherine Engstler ,
Andrea Torzone  and
Jodi Smith
...Show all authors
Hema Desai*
Affiliation:
Department of Rehabilitation Services, Children’s Hospital of Orange County, Orange, CA, USA
Courtney E. Jones
Affiliation:
Acute Care Therapy Services, Primary Children’s Hospital, Salt Lake City, UT, USA
Jennifer L. Fogel
Affiliation:
Department of Pediatric Rehabilitation, Advocate Children’s Hospital, Oak Lawn, IL, USA
Karli A. Negrin
Affiliation:
Department of Therapy and Rehabilitative Services, Nemours Children’s Health, Wilmington, DE, USA
Nancy L. Slater
Affiliation:
Physical Medicine and Rehabilitation Services, Children’s Minnesota, Minneapolis, MN, USA
Kimberly Morris
Affiliation:
Department of Speech-Language Pathology, Rady Children’s Hospital San Diego, San Diego, CA, USA
Lisa R. Doody
Affiliation:
Pediatric Rehabilitation and Development, Advocate Children’s Hospital, Oak Lawn, IL, USA
Katherine Engstler
Affiliation:
Department of Otolaryngology and Communication Enhancement, Boston Children’s Hospital, Boston, MA, USA
Andrea Torzone
Affiliation:
Heart Center, Cardiac Intensive Care Unit, Children’s Medical Center Dallas, Dallas, TX, USA
Jodi Smith
Affiliation:
Mended Hearts Inc., Albany, GE, USA
Samantha C. Butler
Affiliation:
Harvard Medical School, Boston Children’s Hospital, Boston, MA, USA
*
Author for correspondence: Hema Desai, MS CCC-SLP 1201 LA Veta, Orange, CA 92868, USA. Tel: +1 714 482 6990. E-mail: hdesai@choc.org
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Abstract

Early surgical intervention in infants with complex CHD results in significant disruptions to their respiratory, gastrointestinal, and nervous systems, which are all instrumental to the development of safe and efficient oral feeding skills. Standardised assessments or treatment protocols are not currently available for this unique population, requiring the clinician to rely on knowledge based on neonatal literature. Clinicians need to be skilled at evaluating and analysing these systems to develop an appropriate treatment plan to improve oral feeding skill and safety, while considering post-operative recovery in the infant with complex CHD. Supporting the family to re-establish their parental role during the hospitalisation and upon discharge is critical to reducing parental stress and oral feeding success.

Keywords

Oral feedingcomplex CHDfeeding difficultiesdysphagia assessmentdysphagia management

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Type
Review
Information
Cardiology in the Young , Volume 33 , Issue 1 , January 2023 , pp. 1 - 10
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Copyright
© The Author(s), 2022. Published by Cambridge University Press

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