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  • Cited by 3
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    • Publisher:
      Cambridge University Press
      Publication date:
      August 2021
      September 2021
      ISBN:
      9781108874106
      9781108836616
      9781108812672
      Dimensions:
      (229 x 152 mm)
      Weight & Pages:
      0.59kg, 302 Pages
      Dimensions:
      (229 x 152 mm)
      Weight & Pages:
      0.45kg, 302 Pages
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    Book description

    For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation.

    Awards

    Winner, 2022 Choice Outstanding Academic Titles

    Reviews

    ‘This book provides essential reading for anyone interested in what is currently possible or what might soon become possible and how society should think about governing the responsible use of genetic data and biotechnologies … Highly recommended.’

    D. Schulman Source: Choice Magazine

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    Contents


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