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While evaluation approaches for community-academic research groups are established, few tools exist for academic institutional advisory groups across multi-core centers and research, education, and clinical care missions. Institutional advisory group evaluation should consider group processes and their impact on community-centered outcomes. This study describes the community-engaged development of a mixed-method evaluation approach to address this gap and presents pilot outcomes across an NIH-funded center.
Methods:
We utilized a Community of Practice model to co-develop a survey with 14 community and academic representatives of four advisory groups. The final survey included five categories of group process and four categories of outcomes. Storytelling sessions with community partners explored areas where the survey identified discrepancies in perspectives between community and academic team members, as well as areas with lower scores.
Results:
Nine community and 14 academic (staff and faculty) partners completed the survey. Respondents positively assessed group process outcomes (shared values, leadership, community-centeredness, and decision-making), and slightly less positive assessments of institutional outcomes. Storytelling sessions confirmed the overall satisfaction of community partners but highlighted actionable concerns within power-sharing, decision-making, funding equity, and trust-building.
Conclusions:
The results of this equity-centered evaluation suggest the utility and importance of participatory, mixed-methods approaches to evaluating community-academic institutional advisory groups.
The underlying pathophysiological determinants of the clinical features of polycystic ovary syndrome (PCOS) are a disturbance in ovarian and systemic biochemistry/endocrinology. Women with PCOS present a challenge when undergoing in vitro fertilization (IVF) because they may respond sensitively to stimulation. As insulin resistance and hyperinsulinaemia contribute significantly to the pathophysiological process in PCOS, it would be rational to assume therefore that pharmacological agents that modulate insulin sensitivity should improve the symptoms of PCOS. Whilst adjunctive treatment (metformin and clomiphene) was associated with higher ovulation and clinical pregnancy rates (CPR) this did not translate to higher live birth rates, and as such its use in ovulation induction is limited. Metformin treatment was associated with a reduction in the incidence of ovarian hyperstimulation syndrome (OHSS). It may improve follicular growth and development and as such improve the developmental potential of the embryo.