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The past three decades have seen the rise of clinical governance, firstly as a concept and ultimately as a system. Increasing knowledge of the scope of iatrogenic harm to consumers, coupled with public inquiries into poor care around the world, is driving the development of governance of clinical care into an established component of corporate governance. Many gains are being realised in Australia, including a reduction in infections and preventable, in-hospital cardiac arrests, improved experience and outcomes for patients, better governance of clinical care and more meaningful involvement of patients and consumers in health care.
To care for the 14,000 black infantrymen, a new hospital opened when the men arrived. Equipped with state-of-the-art material, it employed the best black doctors in the country, recruited by the Surgeon General’s office. It offered all the features of Deluxe Jim Crow, black excellence in a segregated setting. During the war, it offered the best care possible to men whose health was often shaky, and provided a safe haven for those seeking to escape a racially biased discipline.
For both developed and developing countries in the world, the twenty-first century will be marked by great challenges for healthcare systems. The overwhelming reason will be aging societies that will face an increase in multimorbid, chronic diseases which will include neurological diseases. The probability of surviving acute illness and the medical opportunities to prolong life in chronic-progressive disease will improve in future. As a result the numbers of neurological patients with respiratory impairment caused by prolonged, chronic or chronic-progressive life-threatening disease will increase. Minimizing dependency on life-supporting technologies and care, stabilizing vital functions, optimizing quality of life and participation and alleviating suffering are paramount goals for these patients. The therapeutic approach therefore must integrate intensive care, neurorespiratory care, rehabilitation and palliative care. Furthermore, patient-centered and family-oriented care, which covers the whole lifespan and bridges the gap between inpatient and outpatient care, is needed.
Describe some important features of infant–caregiver relationships; evaluate the role of early life experiences on later development; understand what emotions are for and how they develop.
Most simply, the words ‘pedagogy and care’ capture and describe the core work that is done in the earliest years of education with very young children. Early childhood education (ECE) shares the same general aims as primary, secondary and tertiary education, with an overarching focus on learning and development. Educators working with infants and toddlers practice in a space where pedagogy and care are inextricably linked. It could thus be argued that ideas about pedagogy in relation to infants and toddlers are hardest to reconcile. This challenge may be due to the particular history of infants and toddlers as the youngest children in society, driven by discourses of maternalism and inherently tied to an image of their place in the home, where they were for many centuries. However, infants and toddlers are attending ECE settings in ever-increasing numbers and upholding their right to quality pedagogy is a professional responsibility of all ECE services, leaders and educators.
We’re writers, artists. We’re intake valves, immersed in paradox and desire, sponging up the mess of our incomprehensible world. We pause and linger in the slop of the creative process; we often, if not always, double back to reimagine and revise. We veer, wait, and witness. Academia, however, requires us to be exhaust valves, combusting fumes to stabilize an industry in crisis, with the humanities being no exception. This is not news. “Publish or perish” is real. Operational. It determines vocational futures through output, quantifiable objects, and line items. Organized by academic milestones (comps, defense, and tenure), the system forces the forfeiting of creativity and complexity to privilege the swift, slick manufacturing of ideas. This article brings together the author’s experience in harm reduction to translate public health to the public humanities. This “how-to” essay isn’t about how to rehab your Humanities Center. It’s about how to center care despite the rapid currents of capital and productivity. Just as principles for harm reduction reject universal definitions and diagnostics, so too do I reject universal (i.e., singular) methods for how to run your Humanities Center. Rather, here I show you how to embrace the multiples: the relapses and revisions.
Film offers untapped potential for making critical interventions in world politics, particularly in ways that harness people’s capacity to narrate stories that creatively empower their communities. Combining International Relations scholarship on visual politics with narrative theory and feminist scholarship on care, this paper presents film as a means of exploring and expressing narrative agency; that is, the power to tell stories that represent people’s experiences in ways that disrupt hegemonic narratives. Dialectics of care and narrative agency are explored in the context of military-to-civilian ‘transition’ in Britain. We argue that the landscape of transition for military veterans is dominated by a preoccupation with employment and economic productivity, resulting in a ‘care deficit’ for veterans leaving the military. Through the Stories in Transition project, which used co-created film to explore narrative agency in the context of three veterans’ charities, we argue that the act of making care visible constitutes a necessary intervention in this transitional landscape. Grounding this intervention within feminist care ethics and the related notion of care aesthetics, we highlight the potential for film to reveal in compelling audio-visual narratives an alternative project of transition which might better sustain life and hope in the aftermath of military service.
Mental illness continues to be a leading cause of illness in Australia and Aotearoa New Zealand. The effects of reduced mental health have significant consequences for individuals, families and the community. Prevention and early intervention are crucial to improve health outcomes. Much of the support and care for individuals and families experiencing mental health illness occurs within the community, and nurses are major providers of that care. This chapter focuses on the role of community mental health nurses in providing recovery-orientated care for individuals living with mental illness and their families.
The papers in this special issue have highlighted new perspectives on food charity activities, as well as notions of food and ethics in contemporary Vietnam. As Vietnam is rapidly changing, food-related activities are dynamic phenomena that reflect the social, moral, and economic changes unfolding in society. However, ethnographic research on food culture in Vietnam published in English has been scarce. This epilogue provides a few exploratory insights into interesting social phenomena in recent years that exemplify the shifting landscape of cuisine and food ethics in modern Vietnam.
This introduction to the special issue on food charity, religion, and care in Vietnam compares grassroots philanthropy in Vietnam with broader trends toward religious humanitarianism happening across Asia. The co-editors of the special issue examine why food charity has become popular in urban areas like Ho Chi Minh City by exploring how food holds spiritual, moral significance for both donors and recipients. This survey illuminates how grassroots philanthropy in Vietnam can offer a comparative study for spirituality, ethics, and food practices across Asia, as well as religious humanitarianism globally.
Discourses and how they construct policy ‘problems’ delimit ‘solutions’, including the scale, shape and structure of services. This article discusses how the adult social care sector in England is presented as a policy problem, with the greater use of technology the associated ‘common-sense’ solution – both to the ‘crisis of care’ in a society with an ageing population and as a means to stimulate the national economy. It draws upon critical discourse analysis to examine English policy documents and other government texts published between 2020 and 2022. In doing so, it de-objectivises and de-universalises semiotic claims around care and technology and explores omitted alternatives. In discourse, ageing and care are framed as both problems to be solved and opportunities for entrepreneurship. Technologies are bound together with efficiency, with limited exploration of how use of the former necessarily entails the latter. Technology is, in addition, presented as agentic, inevitable and unassailable, closing off debates as to whether other, less seemingly ‘innovative’ options for reform and change could entail more favourable outcomes. Discourse thus limits the role of the state to stimulating the environment required for technological advancement.
Chapter 8 draws together the major themes of the analysis and prompts further thinking on decolonial feminist modes of conflict resolution. This chapter concludes that the UN’s attempt to stay relevant through developing mediation expertise is counterproductive, and contends that it should instead adopt a solidaristic approach that foregrounds politics and aims to produce ‘knowledge encounters’ between different worlds. The bulk of the chapter discusses some principles for decolonial feminist approaches to mediation, which include encounters across different ontologies of peace, decolonising expertise, solidarity, and establishing relations of care and accountability.
Abstract: Chapter 5 presents an untold tale of an older brother and his younger sister. While their mother was the protagonist in Wolf’s classic ethnography, "A Thrice-told-Tale," the story of these children was obscured. Childhood sibling relation in “the Chinese family” was rarely studied by anthropologists, yet it is an important relation that shapes children’s moral development and family dynamics. I present systematic patterns of this sibling dyad’s social network positioning, uncover their distinct personalities, and trace their nuanced dynamics of care, rivalry and coalitional maneuvers. I closely examine projective tests data to reveal children's own emotional experience in and perspectives about their family life. This chapter is a unique narrative: in addition to illuminating childhood sibling relation, it simultaneously rediscovers the voices of these two children from ethnographic omissions and silences. Therefore, this case study echoes the dual themes of the entire book, children learning morality and anthropologists reconstructing an ethnography.
Corporations and other powerful contemporary institutions take decisions that increasingly impact the possibilities for well-being not only of those who work or live within them and are governed by them but also of distant people who are deeply affected by their functioning. This democratic deficit raises the question of whether the workers and others who are so affected should have a say in the policies that set the basic conditions for their own livelihoods and flourishing. This chapter sketches an understanding of the scope of the All-Affected Principle, taking it as an important addition to the “common activities” principle that requires democratic rights for the members of an institution or community. It proposes that both principles require democratic management (or “workplace democracy”) within firms, and suggests that the All-Affected Principle is especially apt for addressing the exogenous effects of decisions on people beyond the firm, or on distant people impacted by the institutions of global governance. The chapter goes on to consider applications of the All-Affected Principle for other labor rights under capitalism, including the right to form unions, support for care work, and for the unemployed.
Neonatal intensive care units (NICUs) emerge as one of the areas where palliative care is most needed. This study was conducted to examine the attitudes and compassion fatigue levels of NICUs nurses working in Şanlıurfa, where the fertility rate and infant mortality are highest in Turkey, toward palliative care.
Design
This study was conducted in descriptive type.
Methods
The research was carried out with 204 (85%) nurses who agreed to participate in the research between October 2022 and February 2023, out of 240 neonatal intensive care nurses working in the NICU of 2 training and research hospitals and a university hospital in Şanlıurfa. The data of the study were collected using an Introductory Information Form, the Neonatal Palliative Care Attitude Scale, and the Compassion Fatigue Short Scale.
Results
Nurses; compassion fatigue scale mean score was 61.46 ± 26.64, palliative care scale mean score was 3.13 ± 0.74 for organization subdimension, 2.85 ± 0.73 for resources subdimension, and 3.08 ± 0.89 for clinician subdimension. In the results of the study, 8 barriers (parents do not participate in decisions, there is not enough staff, lack of time to spend with the family, lack of policies/rules in institutions for palliative care, lack of education and communication, society’s beliefs, nurses’ personal attitudes toward death, and lack of appreciation of past experiences with palliative care) and 6 facilitators (Nurses’ ability to express their perceptions, views and beliefs about palliative care, to participate and support palliative care, to inform parents, to provide counseling, adequate physical conditions) for palliative care were determined.
Conclusion
While it was determined that nurses had a slightly below moderate level of compassion fatigue and a close attitude toward organization and resources toward palliative care, it was determined that ethical conflict toward palliative care was high in clinical subdimension scores.
Objectives and Significance of Results
It is recommended that all nurses working in the NICU obtain certificates, improvements in resources such as personnel and equipment, improvements in the shift work system and development of policies/rules in institutions for palliative care.
The field of International Studies has often been concerned with either negative conceptualisations of freedom and liberty (i.e. freedom from obstacles and interference) or positive notions of freedom (i.e. the possibility to act and develop). Further, these two notions of freedom have been conceived of as rival and incompatible. Drawing upon Simone de Beauvoir’s ethics of ambiguity (1947), this article rejects such a binary conceptualisation of freedom and instead puts forward a relational understanding of freedom. This article also begins to sketch the possibilities offered by such an understanding of freedom via a nascent dialogue between this relational freedom and the ethics of care. Specifically, it is posited that care and freedom weave together to form the very ethical space and conditions in and through which in becomes possible to pursue various life projects in the first place. Care and freedom, it is suggested, may thus provide one orientation for studying and practising international relations in a manner that moves towards building, amending, and maintaining relations that better support everyone (where this, crucially, also entails the ending of relations which oppress, harm, and cause suffering).
Comprehensive geriatric assessment (CGA) has been one of the cornerstones of geriatric medicine since its introduction by Marjory Warren in 1936. This kind of assessment is defined as a multidimensional and multidisciplinary process related to identifying medical, social, and functional needs and developing an integrated care plan designed to meet the patien’st needs.The practice and applications of CGA have been used to various degrees in mainstream care for older people in the UK and internationally.
Some limitations still exist around the wider implementation of CGA, as its practice relies on members of the multidisciplinary team (MDT) and on an effective communication between them, the patients, and their families. This kind of assessment has been criticised for not adequately acknowledging frailty and for not using patient-reported outcome measures to test its efficacy.
Randomised controlled studies, systematic reviews, and meta-analyses provided considerable evidence for the clinical and financial effectiveness of CGA in various hospital specialties. However, there are still concerns about the generalisability of CGA in community settings. Further research to identify target populations for CGA-led interventions and a consensus on outcome measures are required to realise CGA benefits.
In this chapter we describe required skills and practical tips to deliver CGA across a variety of settings.
Edited by
Roland Dix, Gloucestershire Health and Care NHS Foundation Trust, Gloucester,Stephen Dye, Norfolk and Suffolk Foundation Trust, Ipswich,Stephen M. Pereira, Keats House, London
Psychiatric intensive care units (PICUs) treat patients with an acute episode of a major mental illness who present with additional risk of harm to themselves or others that cannot be managed on an acute psychiatric ward. This chapter outlines standards of care that are expected upon such units, what they are and how the standards were developed with clinical rationale. It also gives examples of other guidelines and standards that impact practice within a PICU setting. It also describes the process of quality improvement in such units and how this relates to continual positive progress within a PICU setting. It alludes to how the principles of psychiatric intensive care can be incorporated within other settings and the need for clear definition of subspecialities within psychiatry.
This chapter advocates for a naturalistic ethical framework that bases normative components in basic human functions, such as emotions, as an effective approach to address intergenerational ethics questions. Using Mencius’s ethical framework as an example, which establishes emotional pivot points to incorporate others’ concerns and worries into moral deliberation, the chapter argues that this approach provides significant theoretical advantages over frameworks that rely on a familial-role-based relational understanding of Confucian ethics and moral cultivation through rituals. The chapter also highlights the flexibility and adaptability of Mencian ethics, which was redeveloped over a thousand years later during the Neo-Confucian flowering and serves as evidence of its philosophical framework’s ability to connect people emotionally and ethically across time.
Women have been perceived as a ‘problem’ for visions of social justice since the emergence of the ‘social question’ in the nineteenth century, prompting feminist debates about whether social justice for women is best pursued on the basis of their equality with, or difference from, men. This chapter reconstructs those debates with a focus on Central Europe, the heartland of the late nineteenth-century European socialist and sexual-reform movements and, throughout the twentieth century, the site of conflicts between fascist, state-socialist, and liberal-democratic regimes of social justice. But these conflicts also have a strongly contemporary character, given the deeply gendered experiences of transition to a capitalist economy in the former socialist states of Central Europe since 1989. The absence of an agreed definition of how social justice for women might be achieved (and in which political contexts) was reinforced throughout the twentieth century by the weight of embedded inequalities of gender, which have remained a defining element of Europe’s modern experience. Bringing women into the story of social justice in twentieth-century Europe highlights the perceived deficit of social justice that the editors of this volume identify as the hallmark of contemporary understandings of social justice in Europe today.